Maileg is excited to team up with International Rett Syndrome Foundation for another donation! We advocate for Rett because every child deserves a chance at a healthy and flourishing life. Through our continued partnership, we hope to raise awareness, fund research for a cure, and empower those on this journey. Join our fight to find a cure and add a new friend to your Maileg collection too.
Rett syndrome is a rare genetic neurological disorder that occurs almost exclusively in girls and leads to severe impairments, affecting nearly every aspect of the child’s life: their ability to speak, walk, eat, and even breathe easily. Rett syndrome occurs worldwide in 1 of every 10,000 female births, and is even rarer in boys.
The hallmark of Rett syndrome is near constant repetitive hand movements. Rett syndrome is usually recognized in children between 6 to 18 months as they begin to miss developmental milestones or lose abilities they had gained.
Hannah loves ocean life, mermaids, hip hop music, and hanging out with her friends and family.
Rett Syndrome has stolen Hannah’s ability to do things independently, but it has not taken her incredible smile and the joy that she brings to everyone who knows her. Despite her challenges with a horrible disease, Hannah faces each day with courage and strength. She is a real life super hero!
Luz was diagnosed with Rett syndrome at 22 months old. She loves music and her favorite is Enrique Iglesias. Her favorite colors are pink and purple (for Rett) She has two amazing siblings Diego and Samantha. Even with all of the obstacles that Rett has thrown her way she has participated in some of her favorite activities: cheer, soccer, dance and even surfing. She is a true description of a Superhero.
Savannah is a happy and vibrant 3 year old. She lives in rural Arizona, but frequently makes the hour drive to Tucson to see all of her therapists and specialists. Savannah loves to ride her horse, dance to music, and watch Moana. Rett Syndrome has left Savannah non-mobile, non-verbal, and without much function of her hands; however, this doesn't stop her from living her life to the fullest. Savannah's sunny personality shines through while she teases, snuggles, and kisses, even if she has to do it all a little differently than other children!
Photo Credits: International Rett Syndrome Foundation